1 100 19 https://collections.countway.harvard.edu/onview/files/original/f2d0c5179f795fada0f9dbcbc6f0fdc3.mp3 d88d5cec0169344f17210549fe885cf2 https://collections.countway.harvard.edu/onview/files/original/97764c98add3ae51cebd17fefa616199.pdf 98266bf727cc2a386d6bad310a52ca8e Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Vieira, Matthew Location The location of the interview. Unknown Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 1:01:15 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5835">Transcript of interview with Matthew Vieira</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Matthew Vieira Subject The topic of the resource Vieira, Matthew Chronic illness Experience of illness Gray, Laura Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Matthew Vieira was born in 1934 in East Boston, Massachusetts. His father, who was Portuguese, worked as a truck driver. Matty had two sisters and describes his home as “Just an average American family.” Mr. Vieira has one son. He and his wife Eleanor are very involved with the hemophilia community and feel support is critical in coping with the disease. Matty was diagnosed with severe Factor VIII deficiency at age six. He was successfully treated for his Hepatitis C Abstract A summary of the resource. Transcript and .mp3 file of oral history interview with Matthew Vieira Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 August 12 Contributor An entity responsible for making contributions to the resource Gray, Laura Vieira, Matthew Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (35 pages) and 1 .mp3 file (70 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/820901bfbb1e58a851e05a83114a6641.mp3 298e2ad65033dfcdf86d24cddf5339be https://collections.countway.harvard.edu/onview/files/original/1778671130f1effdc8476b6c661be182.pdf 7a49e01d373a062deafcaf9131215e0d Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Story, Francis Location The location of the interview. Beverly. Massachusetts Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 2:08:07 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5833">Transcript of interview with Francis Story</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Francis Story Subject The topic of the resource Story, Francis Chronic illness Experience of illness Gray, Laura Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Francis Story was born in 1928 in Beverly, Massachusetts. Sonny, as he is known, is married and has six children. He has grandsons affected with hemophilia. Sonny grew up during the Depression and has vivid memories of that time. He played in a band and ran an insurance company and now is retired. He has mild Factor VIII deficiency Abstract A summary of the resource. Transcript and .mp3 file of oral history interview with Francis Story Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 August 5 Contributor An entity responsible for making contributions to the resource Gray, Laura Story, Francis Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (54 pages) and 1 .mp3 file (146 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/b7b52fc4ae3d37394aafd417521d3b1e.mp3 fe88e0a5f6e2281410ae4f39cafe0e09 https://collections.countway.harvard.edu/onview/files/original/245cffaa957c4f1f012cfc476eb8de17.pdf 4230efc14bff4161a6d98bcd33eb6d76 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Somers, William Location The location of the interview. Lexington, Massachusetts Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 50:08 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5831">Transcript of interview with William Somers</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with William Somers Subject The topic of the resource Somers, William Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource William Somers was born in 1964 in Lutchlade, England. He is married and has one child. He has a PhD in biophysics. Coming to the United States and dealing with our health care system was quite a shock. He has moderate factor VIII deficiency and hepatitis C Abstract A summary of the resource. Transcript and .mp3 file of oral history interview with William Somers Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 September 28 Contributor An entity responsible for making contributions to the resource Gray, Laura Somers, William Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (33 pages) and 1 .mp3 file (57.3 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/7ba93e00d75eef34ddc7793e98659b86.mp3 ab5cc44ba34a882011fe898e2e6c00ac https://collections.countway.harvard.edu/onview/files/original/150a9e35769db108f09b44c9d07b0568.pdf 45500b15c122f7d66808ff704023de7f Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Place, Stephen Location The location of the interview. Cape Cod, Massachusetts Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 50:53 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5829">Transcript of interview with Stephen Place</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Stephen Place Subject The topic of the resource Place, Stephen Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Stephen Place was born in 1954 in Oak’s Bluff on Cape Cod’s Martha’s Vineyard Island. Stephen is married and has two daughters. He has worked in sales. He has a nephew with hemophilia. He believes you must “know your limits and go to the limit.” He has mild Factor VIII deficiency Abstract A summary of the resource. Transcript and .mp3 file of oral history interview with Stephen Place Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 September 14 Contributor An entity responsible for making contributions to the resource Gray, Laura Place, Stephen Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (31 pages) and 1 .mp3 file (58.2 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/fdb3e6c4cdbd8afb96f649d56cc823ff.mp3 6454e9f36c5324803d1bad198e182f95 https://collections.countway.harvard.edu/onview/files/original/9a7d83f87676514d466d6638811b7661.mp3 402cd4d692ea65b83c7ba4c73ddacf56 https://collections.countway.harvard.edu/onview/files/original/89f6194ab61d44df0d628adf346bd5b7.pdf fd9f93e7d6cfb0597e32b5543fb1b4a4 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Massie, Robert Location The location of the interview. Somerville, Massachusetts Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 2:54:71 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5827">Transcript of interview with Robert Massie</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Robert Massie Subject The topic of the resource Massie, Robert Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Robert Massie was born in 1956 in New York. His parents wrote the book Journey, an autobiographical account of their son with hemophilia Mr. Massie is an ordained Episcopal minister and also has an MBA from Harvard College. He is married and has three children. He speaks of the richness of his life even with all the challenges. Mr. Massie has severe factor VIII deficiency, HIV and hepatitis C. He is currently waiting for a liver transplant Abstract A summary of the resource. Transcript and .mp3 files of oral history interview with Robert Massie Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 October 21 Contributor An entity responsible for making contributions to the resource Gray, Laura Massie, Robert Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (76 pages) and 2 .mp3 files (105 MB and 94.5 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio files Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/ace99bcb08817b7e6863c054f497e62a.pdf 7ba545542be6ce7e30767df3e47dd5e5 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Martinowsky, James Location The location of the interview. Unknown Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5824">Transcript of interview with James Martinowsky</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with James Martinowsky Subject The topic of the resource Martinowsky, James Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Dr. James Martinowsky was born in 1953 in Washington Heights, New York He has moderate factor VIII deficiency and hepatitis C. He is married and has one teenage son. James is a child, adolescent and adult psychiatrist teaching and practicing in the Boston area.. He attended medical school in New York City, training and practicing on the same wards and clinics where he was treated for his hemophilia as a child. He believes the long-term psychological damage from hemophilia often outweighs the physical. Abstract A summary of the resource. Interview with James Martinowsky for the Boston Hemophilia Center Oral History Project, A Gift of Experience, by Christine Harland, October 7, 2004 Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 August 7 Contributor An entity responsible for making contributions to the resource Gray, Laura Martinowsky, James Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text Extent The size or duration of the resource. 1 transcript (61 pages) Medium The material or physical carrier of the resource. Digital text document Language A language of the resource English Type The nature or genre of the resource text Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/072d97cfdb4f0fc5a8e0b0b2d1e7cb05.mp3 b482d9ff641bfb3f5e35000837427e8b https://collections.countway.harvard.edu/onview/files/original/3f08df6fa41b2298d1074b946dfd61cc.pdf b3d4ae65042dddde46caf96653752207 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Harland, Christine Interviewee The person(s) being interviewed. Lynch, William Location The location of the interview. Unknown Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 2:12:04 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5823">Transcript of interview with William Lynch</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with William Lynch Subject The topic of the resource Lynch, William Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource William Lynch was born in 1960 in Fall River, Massachusetts. He went to school in Fall River; his mother was a nurse and his father was a school principal. When he was diagnosed with hemophilia at age one, it came as a surprise to his family because there was no history. He has two brothers, neither of whom has the disease. Billy attended Bridgewater State College, is single and works with the retarded. He feels that Factor manufacturers should have admitted that they made mistakes. He feels lucky to be alive and healthy and would never have imagined that he’d be this well in 2005. Billy has severe Factor VIII, HIV and Hepatitis C Abstract A summary of the resource. Interview with William Lynch for the Boston Hemophilia Center Oral History Project, A Gift of Experience, by Christine Harland, September 20, 2004 Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 September 20 Contributor An entity responsible for making contributions to the resource Harland, Christine Lynch, William Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (67 pages) and 1 .mp3 file (151 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/9be51715d8e39ea54a1236a1c7d4da23.mp3 89d3bfb49c30119c7111954b146b629e https://collections.countway.harvard.edu/onview/files/original/401ceca18d6b817fc29bd6b981df8c38.pdf ed1a6bbe86feedb1ebd2eaa525769856 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Harland, Christine Interviewee The person(s) being interviewed. LePage, David Location The location of the interview. Unknown Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 1:05:12 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5821">Transcript of interview with David LePage</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with David LePage Subject The topic of the resource LePage, David Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource David LePage was born in 1963. David is single and lives alone. He has dealt with mental and physical challenges throughout his life. He has been a public speaker about his experiences living with chronic illness and has found that his faith has been an enormous support. He has severe Factor VIII deficiency, HIV and was successfully treated for Hepatitis C Abstract A summary of the resource. Interview with David LePage for the Boston Hemophilia Center Oral History Project, A Gift of Experience, by Christine Harland, August 23, 2004 Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 August 11 Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (28 pages) and 1 .mp3 file (74.6 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/d600c64721ed236bf92136475c35b2be.mp3 2722f6f1e00926907ea2f61884533612 https://collections.countway.harvard.edu/onview/files/original/19163ac99bbb387301506ad3438692df.pdf b72a92b650451912a51e3f5221e6e46a Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Kucinski, Christopher Location The location of the interview. Raynham, Massachusetts Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 1:18:16 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5819">Transcript of interview with Christopher Kucinski</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Christopher Kucinski Subject The topic of the resource Kucinski, Christopher Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Christopher Kucinski was born in 1949 in Brockton, Massachusetts Married with four children, Chris grew up in a family of ten, seven of whom had hemophilia Chris was loved deeply by his family and was a beacon of hard work and positive thinking. He died in 2005. He had severe Factor IX deficiency, HIV and Hepatitis C Abstract A summary of the resource. Transcript and .mp3 file of oral history interview with Christopher Kucinski Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 November 23 Contributor An entity responsible for making contributions to the resource Gray, Laura Kucinski, Christopher Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (52 pages) and 1 .mp3 file (89.5 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/0d5b0f92b5469c0f64a81e9cf35aea8e.mp3 f974cf613542de2e3529ad3e9a22b161 https://collections.countway.harvard.edu/onview/files/original/e4fefdc5e7e096e0897c964c31adc33a.pdf 8047ce10f214819dfe693ac18e617b75 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Harland, Christine Interviewee The person(s) being interviewed. Jarratt, Robert Location The location of the interview. Unknown Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 1:11:20 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5817">Transcript of interview with Robert Jarratt</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Robert Jarratt Subject The topic of the resource Jarratt, Robert Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Robert Jarratt is a married man who was born in 1943 in Tennessee He is married and has a daughter. Bob was diagnosed when he was in the Air Force and the confirmation of his diagnosis ended his military career. After open- heart surgery in the mid-1990s, Mr. Jarrett volunteered for the New England Hemophilia Association because he wanted to give something back for all the support and care he received from the hemophilia community. He has moderate Factor IX deficiency Abstract A summary of the resource. Transcript and .mp3 file of interview with Robert Jarratt Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (37 pages) and 1 .mp3 file (81.6 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 Date Created Date of creation of the resource. 2004 November 1 https://collections.countway.harvard.edu/onview/files/original/3688b028d9d6d31cb63368751dc5af3f.mp3 8baddb5a41bf852739632578dba3fd7a https://collections.countway.harvard.edu/onview/files/original/f88e00ca397d55aeca1992332efc4795.pdf 4c312c2949694f63559d01bda068cedd Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Frost, Theodore Location The location of the interview. Haverhill, Massachusetts Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 58:39 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5815">Transcript of interview with Theodore Frost</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Theodore Frost Subject The topic of the resource Frost, Theodore Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Theodore Frost was born in Haverhill, Massachusetts in 1915. Theodore, who was married but had no children, worked as a carpenter most of his life. He has many memories of years spent in the hospital when he was a child and the miracle of Factor VIII when it arrived. He has mild Factor VIII deficiency Abstract A summary of the resource. Transcript and .mp3 file of an oral history interview with Theodore Frost Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 August 26 Contributor An entity responsible for making contributions to the resource Frost, Theodore Gray, Laura Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (22 pages) and 1 .mp3 file (67.1 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/491ed77860588529277eecb7476d9588.pdf 903e298a018c4493358df37ebcc07097 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Harland, Christine Interviewee The person(s) being interviewed. Flagg, Andrew Location The location of the interview. Unknown Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5813">Transcript of interview with Andrew Flagg</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Andrew Flagg Subject The topic of the resource Flagg, Andrew Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Andrew Flagg was born in Massachusetts in 1959. His father was a plant manager at a plastics firm and his mother was a bookkeeper. He has two older sisters. His grandfather died from complications of hemophilia when Mr. Flagg was eight years old. Mr. Flagg took his Bachelor’s degree in Biology in Boston and his Master’s in Biology in Ohio. Married with two step-children, he works as a medical writer. Mr. Flagg has severe Factor VIII deficiency, HIV and Hepatitis C Abstract A summary of the resource. Transcript of interview with Andrew Flagg Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2005 March 17 Contributor An entity responsible for making contributions to the resource Harland, Christine Flagg, Andrew Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text Extent The size or duration of the resource. 1 transcript (60 pages) Medium The material or physical carrier of the resource. Digital text document Language A language of the resource English Type The nature or genre of the resource text Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/fe6b60e181ee265343009aeda20bc78a.mp3 3861371ebfcc74423536d159da687e1d https://collections.countway.harvard.edu/onview/files/original/0d9936f7f39ec541541f7d7384353167.pdf 07c619d008b3c1fde41d5a3f6834d373 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Drummey, Jeryl Location The location of the interview. Unknown Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 1:17:38 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5812">Transcript of interview with Jeryl Drummey</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Jeryl Drummey Subject The topic of the resource Drummey, Jeryl Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Jeryl Drummey was born in 1941 in Brighton, Massachusetts Married with one daughter, he worked for ten years in a bookstore and then for twenty-five years for a distributor of women’s clothing. Jeryl feels strongly that health providers must treat the person and not just the disease. He has moderate Factor VIII deficiency Abstract A summary of the resource. Transcript and .mp3 file of an oral history interview with Jeryl Drummey Date Created Date of creation of the resource. 2005 March 17 Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (41 pages) and 1 .mp3 file (88.8 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Contributor An entity responsible for making contributions to the resource Drummey, Jeryl Gray, Laura https://collections.countway.harvard.edu/onview/files/original/0eeab3e7724d3a9cce70e05a8e405905.mp3 d9203099227dd869f5499ef88a9dc74d https://collections.countway.harvard.edu/onview/files/original/e728fdf058379f1422e30ce22837b5c4.pdf 13bf993599479b030834506efbeb0a2b Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Dowling, Michael Location The location of the interview. Children's Hospital, Boston, Massachusetts Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 2:03:08 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Michael Dowling Subject The topic of the resource Dowling, Michael Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Michael Dowling is a single man who was born in 1960 in St. Albans, Vermont He has been very active in the HIV and hemophilia community. He learned of his positive HIV status when a public health official told him from his car in a parking lot “You’re positive and have a good day!" He owns his own business and is in love. He has severe factor VIII deficiency, HIV and Hepatitis C Abstract A summary of the resource. Interview with Mike Dowling for the Boston Hemophilia Center Oral History Project, A Gift of Experience, by Laura Gray, September 24, 2004 Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 September 24 Contributor An entity responsible for making contributions to the resource Dowling, Michael Gray, Laura Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Format The file format, physical medium, or dimensions of the resource text audio Language A language of the resource English Type The nature or genre of the resource text sound Is Part Of A related resource in which the described resource is physically or logically included. H MS c228 Medium The material or physical carrier of the resource. Digital text document, digital audio file Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 Extent The size or duration of the resource. 1 transcript (68 pages) and 1 .mp3 file (140 MB) https://collections.countway.harvard.edu/onview/files/original/980d4fc5915ecd187b3778c04291ec6e.mp3 547f7d617a8398c9bc7323069a84d628 https://collections.countway.harvard.edu/onview/files/original/008f425da75db911f027282faa0942f8.pdf 82fae9823c6ec4cbc18d3ddecdb2b7ec Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Harland, Christine Interviewee The person(s) being interviewed. Donovan, Michael Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 1:09:06 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="&quot;http://collections.countway.harvard.edu/onview/admin/files/show/5808">Transcript of interview with Michael Donovan</a> Location The location of the interview. Unknown Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Michael Donovan Subject The topic of the resource Donovan, Michael Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Michael Donovan was born in Boston, Massachusetts in 1962. After his father left the family, Mr. Donovan’s mother moved to Houlton, Maine and, later, to Whitman, Massachusetts, where Mr. Donovan went to school He has a degree in electronics and has worked for many years in auto repair at a dealership One of his two brothers passed away from HIV. He is not married, travels at every opportunity and enjoys competing in poker tournaments. He has moderate factor VIII deficiency and Hepatitis C Abstract A summary of the resource. Interview with Michael Donovan by Christine Harland for the Boston Hemophilia Oral History Project, October 10, 2004 Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 October 10 Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 134 KB .pdf document, and 1 .mp3 file (79 MB) Language A language of the resource English Type The nature or genre of the resource text sound Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Identifier An unambiguous reference to the resource within a given context H MS c228 https://collections.countway.harvard.edu/onview/files/original/fba7e24f317e135a72dabbcaf23900bb.mp3 5985bc7d97cd3f984558ae72a11ec096 https://collections.countway.harvard.edu/onview/files/original/d1e6c6e84355f124db01c24291c39c63.pdf 2f6c5e478094a4bb2a1e607b4fe529e4 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Deschenes, Clifford Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 1:14:30 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Location The location of the interview. Brigham and Women's Hospital, Boston, Massachusetts Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5806">Interview transcript</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Clifford Deschenes Subject The topic of the resource Deschenes, Clifford Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Cliff Deschenes was born in 1954 in Lawrence, Massachusetts He works in electronics at Wang Laboratories and is married with two children. One nephew has hemophilia He has learned to take one day at a time so as not to get too frustrated. Cliff has severe Factor VIII deficiency, HIV and Hepatitis C Abstract A summary of the resource. Interview with Clifford Deschenes for the Boston Hemophilia Center Oral History Project, A Gift of Experience, by Laura Gray, September 15, 2004 Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 September 15 Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 document (40 pages) and 1 .mp3 file (85.2 MB) Language A language of the resource English Type The nature or genre of the resource text sound Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/d02b4702fcf07018aed1f9bd5eaf0ab6.mp3 2b314b2db032351be0dee46c718b5cdb https://collections.countway.harvard.edu/onview/files/original/fdaba19dab2089c678a4e6c357cd5b2a.pdf 32a652f268d3d95b8377aee96d4582e5 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Gray, Laura Interviewee The person(s) being interviewed. Bourne, Wendell Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 1:55:09 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 160 kb/s Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/scripto/transcribe/17758/5804">Transcript of interview with Wendell Bourne</a> Location The location of the interview. Unknown Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Wendell Bourne Subject The topic of the resource Bourne, Wendell Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Wendell Bourne was born in 1948 in Cambridge, Massachusetts He is married and has four children and one grandson with hemophilia Mr. Bourne is the director of multicultural education for Kindergarten through 12th grade in the Cambridge school system. He is an African-American whose faith has been an enormous resource in handling life’s challenges. He has severe Factor VIII deficiency and Hepatitis C Abstract A summary of the resource. Interview with Wendell Bourne for the Boston Hemophilia Center Oral History Project, A Gift of Experience, by Laura Gray, July 29, 2004 Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 July 29 Contributor An entity responsible for making contributions to the resource Bourne, Wendell Gray, Laura Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 document (48 pages) and 1 .mp3 file (131 MB) Language A language of the resource English Type The nature or genre of the resource text sound Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Identifier An unambiguous reference to the resource within a given context H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/0ff112b0d3daf2a31444aab05ee44110.pdf 454db99b1605d4fa3e0be7504b7702ba Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Harland, Christine Interviewee The person(s) being interviewed. Avida Location The location of the interview. Unknown Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/files/show/5802">Transcript of oral history with Avida</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Avida Subject The topic of the resource Avida Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Avida was born in Massachusetts in 1964. At the age of nine he moved to Michigan He has an advanced degree in psychology and is currently working to grow a nonprofit community arts and wellness center in Massachusetts He has severe hemophilia, is HIV positive, has Hepatitis C and is healthy and happy (5-H Club) Abstract A summary of the resource. Transcript of oral history interview with Avida (pseudonym) for the Boston Hemophilia Center Oral History Project, A Gift of Experience, by Christine Harland, October 20, 2004 Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 October 20 Contributor An entity responsible for making contributions to the resource Avida Harland, Christine Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Format The file format, physical medium, or dimensions of the resource text Extent The size or duration of the resource. 1 transcript (45 pages) Language A language of the resource English Type The nature or genre of the resource text Date Available Date (often a range) that the resource became or will become available. 2025 Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 https://collections.countway.harvard.edu/onview/files/original/bca97d6eb4908e2afd038aebaa1fbe93.pdf ecc11eeb6036b177dcb9b9ed5f90365c https://collections.countway.harvard.edu/onview/files/original/cef1cfa1951ef8e550778baf6348011c.mp3 93031d51b2057e2122ed6566156a95d8 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Gift of Experience, 2004-2007 (inclusive). H MS c228 Abstract A summary of the resource. Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center. Oral History A resource containing historical information obtained in interviews with persons having firsthand knowledge. Interviewer The person(s) performing the interview. Harland, Christine Interviewee The person(s) being interviewed. Arruda, Roy Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 1:57:52 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 1.28 Mbps Transcription Any written text transcribed from a sound. <a href="http://collections.countway.harvard.edu/onview/admin/scripto/transcribe/17756/5800">Transcript of interview with Roy Arruda</a> Location The location of the interview. Unknown Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oral history interview with Roy Arruda Subject The topic of the resource Arruda, Roy Chronic illness Experience of illness Hemophilia Hemophilia -- Patients Oral history Description An account of the resource Roy Arruda was born in 1960 in the Azores His older brother, who also had hemophilia, died of complications from AIDS in 1995. Roy, who is not married, works as a nursing assistant with people who have AIDS. He is an avid hiker on the Appalachian Trail and a recreational all-terrain vehicle driver. Roy has often spoken publicly about his and his family’s experience coping with AIDS. He has severe factor VIII deficiency, HIV and Hepatitis C Abstract A summary of the resource. Transcript and .mp3 file of an oral history interview with Roy Arruda Creator An entity primarily responsible for making the resource Boston Hemophilia Center Oral History Project, A Gift of Experience Date Created Date of creation of the resource. 2004 August 23 Contributor An entity responsible for making contributions to the resource Arruda, Roy Harland, Christine Rights Information about rights held in and over the resource The Harvard Medical Library does not hold copyright on all materials in this collection. For use information, consult Public Services at chm@hms.harvard.edu Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to the original work depicted requires advance notice. Contact Public Services at chm@hms.harvard.edu for additional information Format The file format, physical medium, or dimensions of the resource text audio Extent The size or duration of the resource. 1 transcript (64 pages) and 1 .mp3 file (134 MB) Medium The material or physical carrier of the resource. Digital text document, digital audio file Language A language of the resource English Type The nature or genre of the resource text sound Provenance A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource. These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006 Is Part Of A related resource in which the described resource is physically or logically included. Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007, H MS c228 Identifier An unambiguous reference to the resource within a given context H MS c228